spin 4 crohn’s & colitis cures (Boston)

The very first spin4 Crohn’s & Colitis Cures in Boston was a huge success, and the event raised more than $40,000 to benefit the Crohn’s & Colitis Foundation of America(CCFA)! Woohoo!

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The first ever spin4 event launched last year in 9 cities across the country with 650 people in attendance raising nearly $400,000. This year, the indoor cycling relay will be held in over 20 cities with Boston being one of the first.

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There isn’t a cure (yet) for Crohn’s disease or ulcerative colitis, but the fundraising efforts for events like spin4 make IBD research possible. I know I’ve told this story on CNC in the past, but it’s important to share again to emphasize just how necessary fundraising and research are to patient care. When my GI doctor was first hired at MGH back in 1996, the only treatments available to IBD patients were steroids and narcotics, both of which can have terrible side effects. Today, there are many more options (safer and with fewer side effects) and they continue to grow every year. In fact, just a few years ago, Entyvio, the drug that finally put me into remission, wasn’t even available to patients. Thanks to fundraisers, like spin4 and other events hosted by the CCFA, patients like me have such a better chance of living a healthy, happy life.

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The two-hour indoor cycling event was held at EverybodyFights in South Boston, which was an amazing space and perfect for an event like this.

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Each bike had a fundraising commitment of $1,000, so once you registered, you had the option of riding solo for the entire 2 hours or joining a team and splitting up the time.

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I thought a team would be a lot of fun, so I asked Mal and a couple of friends to join me. We divided the time into four 30-minute sessions, which ended up being a quickie, high-intensity, and very sweaty workout for the each of us! 🙂

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I’m so glad that I had the opportunity to participate in spin4 Crohn’s & Colitis Cures. I loved being part of such an amazing event that benefits a cause that is so near and dear to my heart. If you’re interested in donating to the CCFA, our team’s fundraising page will stay open until December. And a huge THANK YOU to everyone who has donated so far. It really means a lot! 🙂

9 Comments

  1. What a great way to raise funds!

    I’ve seen you mentioned UC before on here and I’m sure you’ve probably heard it all before but I recently came across this article from a woman who went into remission by changing her diet and is now drug-free! http://www.forksoverknives.com/plant-based-diet-has-me-winning-my-long-hard-battle-with-ulcerative-colitis/

    Just thought I’d share it in case you haven’t seen it before! There are a couple other articles on the site from people with similar experiences as well.

    1. Thank you for the link! I’ve read that blog post and tried a plant-based diet for awhile, but, unfortunately, it didn’t work for me. (I ended up on Remicade and now Entyvio.) I’m glad though that diet changes help some people!

  2. I just found your blog. Like you, I’m going on 4 years with UC without lasting remission. I’ve moved up the chain of heavy hitting drugs and I think remicade is also failing. Im probably looking next at entyvio. I’m wondering how you’re doing with it and how long until you found yourself in remission.

    1. It’s working for me! But it took a good 5 months to really kick in. I had improvement after the initial loading doses (3 infusions), but then things fell apart. I went on Uceris and Cortifoam, which kind of helped, but I was starting to lose hope. After my 6th infusion, things got so much better. That was back in July, and I’m still in remission. I hope you decide to try Entyvio and be sure to keep the faith if it doesn’t start working immediately. It’s worth the wait. Good luck!!

  3. I have noticed over the years there are a few things that stand out when trying to overcome Colitis; tips that seem to give most clients significant relief are:
    1. Calming down the GI tract with natural whole food supplements like: Okra, Chlorophyll, and vegetarian digestive enzymes.
    2. Avoiding any foods that cause extra inflammation, (because this is an “itis”) one should really try and avoid the typical triggers of inflammation, wheat/gluten, soy, dairy, corn, nightshade foods, caffeine, alcohol and sugar. This seems like a very strict list and it all depends on how severe your Colitis is ( I would say they are all serious). Think that your body should be able to address inflammation and naturally reduce it; however, when it has stresses hitting it from all directions like these foods; it is unable to do it.
    3. Avoid the “dirty dozen” foods, you can google this and see the list; this shows that even in healthy foods, non organic healthy foods there are crazy amounts of pesticides that will aggravate any kind of digestive issue or inflammation.

    When things have calmed down some, using other digestive enzymes and sometimes HCL can help prevent future irritation. Most people think that stomach acid is bad, but realize that we need adequate amount of hydrochloric acid in our guts in order to break down and digest foods. Be careful not to just pound down a bunch of HCL, you really need to be careful and be monitored by a doctor.

    Your In Health
    Dr. Tyler
    http://elitehealthprograms.com

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