High Low High {Memorial Day Weekend}

Heyyyy! How was your Memorial Day weekend? I hope it was a great one for you! And many thanks to the veterans who have served our country.

We had a nice long weekend over here. It was a mix of emotions at times, so I figured a High Low High post was the perfect way to recap it. If you’re unfamiliar with this series, I recap the high and low points of the weekend. It’s fun. Ok, here we go!

HIGH: Starting the weekend with a tough Saturday morning partner workout at CrossFit (fyi – reps were increased to 60 for all exercises), which included me doing 12 HSPUs. Whoa. Five of them were even linked. Hey now. Progress!

LOW: Stopping by CVS/pharmacy after CrossFit to pick up a prescription for Budesonide/Entocort since Entyvio isn’t really working for me. Ugghhh. My doctor assures me there’s still a chance that it might (some patients need 3-4 “maintenance” doses for it really to kick in), but I’m starting to lose hope. Budesonide will hopefully get me through the next few months. (It’s a steroid, so I’m on a 3-month taper). *sigh*

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HIGH: Having an amazing time and celebrating our friends at their wedding in Meredith, New Hampshire! So fun!! Jen and Jon are such an awesome couple and it was so nice to spend time with them and the rest of our hometown friends. Annnnnnd Mal and I stayed overnight, kid-free. Yayyy!

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LOW: In two years, it was the first time we had an overnight without Q-man. Obviously, we love our little guy, but we really need more adult-only overnight trips in our life!

HIGH: Trying Lila Wines Sauvignon Blanc (aka wine in a can). It was actually really tasty and so convenient! I will definitely keep it in mind for trips to the beach this summer. FYI: My dress is from Banana Republic, but I bought it 5+ years ago.

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LOW: Not trying the other flavors of Lila. I’m so curious now!

HIGH: The “spirit animal” place card holders at the wedding. Such a fun idea, right?

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LOW —> HIGH: My spirit animal was a squirrel. Ha! I was actually a bit confused by it until I read the symbolism behind the animal and it’s quite fitting now!

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HIGH: Having a blast on the dance floor with Mal. At one point, he almost (aggressively) clotheslined me with his “dance moves,” but it was so funny I almost peed my pants laughing so hard!

LOW: Sneaking out of the reception a number of times to deal with not-so-fun UC symptoms. Blah.

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HIGH: Party time with the L-town crew!! We’re seriously so lucky to have these people in our lives.

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LOW: Only enjoying one donut from the wedding “cake.” OMGSOGOOD. I wish I took one to go!

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HIGH: Sleeping in on Monday morning.

LOW: Mal waking me up at 7:20 AM. WHYYYYYY!?!?!

HIGH: Finding a cute little coffee shop just steps away from our hotel.

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LOW: Needing to eat and run to avoid a Memorial Day parade and holiday traffic.

HIGH: Barely hitting any traffic on the way to my sister’s house to pick up Quinn and Murphy. Hooray!

LOW: Quinn napping in the car, but waking up the second we got home. Whomp whomp. (He actually did really well with just a 40-minute nap and never turned into a crank-monster.)

HIGH: Meal planning and then grocery shopping at Trader Joe’s with Q-Man. I have some tasty meals planned for the week and couple of them will be on CNC soon!

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LOW: Murphy sitting in Quinn’s chair. Haha! (Video on Snapchat @carrotsncake.)

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HIGH: Mal buying a new car!! He’s wanted one for awhile now and after someone (a lady in a white Toyota Sequoia – sadly, we weren’t able to get her license plate) dented his passenger side door when we were at Coffee Shack one Saturday morning, he was really itching to upgrade.

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Questions of the Day

What’s your spirit animal? 

Wine in a can? Yay or nay?

Ever been a victim of a hit and run? (What is wrong with people?! That lady = so much bad karma in her future!) 

42 Comments

  1. I’m so sorry you were not feeling well during the wedding. Church landing is one of my favorite getaway spots. Congrats on the new car.

  2. how do you know your spirit animal, maybe I will google it. wine in a can interesting haven’t tried it, don’t think we have had a hit and run thank goodness

  3. Ugh, sneaking out of special events with UC symptoms is the worst!

    Hit and runs are the worst. Glad Mal got a new car though. My husband’s two month old new car was hit really badly in December. I witnessed the whole thing and the guy who hit in walked in the restaurant pretending like nothing happened. I actually confronted him and he seemed a bit shocked. He didn’t have insurance so we were lucky to go to subjugation and get our deductible back and everything.

  4. Sorry about the car and the Entocort. I know it is a bummer, but if you haven’t been on it before, I found it much gentler and easier to handle than Prednisone (which I hate). Good luck, Tina! I love that spirit animal idea! I think last night we (long story) decided that I am basically a cat–I am sociable when I want to be, I want to be sociable in a very particular way, and then leave me alone, lol.

    1. Do you remember how long the Entocort would take to kick in? I assume longer than Prednisone, but my symptoms are 0% better.

  5. Wine in a can – yay! I saw this on your snap and was instantly curious. Sorry to hear Entyvio isn’t working. But there’s nothing like a loving husband with killer dance moves, so at least you’ve got that 😉

  6. It looks like you had a busy and fun long weekend! Bummer to hear your UC symptoms are back – hopefully the steroids will help you feel better. And wine in a can – love it! I need to look for some the next time I’m out 🙂

  7. We considered the same car!! I loved it. We were buying used so we had a few different model/makes in the running and went with what we could easily find for a good price. Congratulations!!!

  8. Yes! Hubby and I have BOTH been victims of a hit and run. So not cool!
    Glad you were able to have an overnight away. You must do it more often! We have taken 3 trips “adults only” since having EK almost 2 years ago and I feel its so good for the marriage!

  9. I’m sorry the entyvio isn’t working yet… fingers crossed that it will soon! I’ve been on budesonide a number of times for mine and like it much better than prednisone. The most recent time I was on it, it took almost a week to really see improvement! I hope you feel better really soon… I can totally sympathize with you! I’m glad you were able to have some fun over the weekend, it’s hard to not let the flare ruin the fun of things (I struggle with this big time!).

  10. Hi Tina,
    Thinking of you and hoping the Entyvio will begin to work soon! I’m on it as well (I think 4-5 doses in?) and had surgery last week to remove about ten inches worth of fistulas in my small intestine. However, they said that they’re confident the Entyvio is working because all scans looked better now than they did a few months ago, despite the pain. They just needed to take out the “bad cells” in order for the meds to make me start feeling better. So I’m hoping yours will begin to work too sooner rather than later! Steroids are no fun!
    Thank you for being so open about your disease. It’s comforting to hear someone else going through it too.
    Have a great week!

  11. I’m sorry to hear your UC symptoms are back 🙁 I read a medical journal article the other day and thought of you. I was pretty unaware of UC until you started talking about it!

    I think you’ve mentioned fecal bacteriotherapy before but a new study came out that found over 60% of 62 patients went into remission after the therapy. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3868025/ Hoping you find something that works for you. Is remicade out after it stops working or do you revisit it later?

    1. FMT is so promising, but the big issue is that it’s not approved by the FDA for treatment of IBD. Whomp whomp. (There are some other issues too – wrote about them in my recap of the Boston IBD Symposium if you’re curious). Remicade already stopped working for me, so I went on Entyvio back in February. Sadly, it’s not working either, but Remicade isn’t an option in the future since my body likely built up antibodies to it, so it won’t be effective. Unfortunately, I’m running out of options.

      1. @Tina: Right. I’m hoping the research is close to finding a promising solution for you and others (FMT or other!).

        Thanks for responding about Remicade…that makes sense!

  12. I haven’t had wine in a can but I’ve had a wine juice box haha. I’ll have to try it out! Also my spirit animal is definitely a panda, they’re just so chill. Also, I freakin loooove your dress.

  13. I love wine so much but I am not sure I can try it in a can.

    Sorry about your IBS symptoms. You really seem to handle it wll. Good luck findings SOMETHING that helps put them into remission.

    LOVE the dress…

    and yes married people need some away time without the kids. I believe it builds strong marriages.

    1. I actually heard a really interesting podcast about it, but my doctor’s nurse kind of blew it off when I asked about it. I’m seeing my doc later this month, so I will definitely bring it up to him. Thank you for the reminder!

    2. My suggestion would be to come with some printouts of the studies done on it. My gastroenterologist kind of ignored me when I first brought it up, but I went to the L DN website and they have a ton of really excellent links on there. After she read some of the data, she was willing to give it a try. It has to be ordered from a specialty compounding pharmacy, since it is an extremely low dose of the regular version of the medication. Let me know if you have any luck with your doctor!

  14. I’m just started to read your blog and interestingly I came across it in trying to find support for myself. I have Crohn’s disease. I went back and read your history with Uc and it is my life story.. It’s almost as if I’m following your footsteps. I’m in a flare myself now as remicade just stopped working for me recently. Now I’m waiting for the washout period so I can start clinical trial. Have you heard of etrolizumab? I was considering entyvio but my GI doc prefers this other one. My doc runs trials and is known as the worlds best GI. I moved to him about a year ago from scripps and he immediately got me better after being on a flare for almost a year:(. My diagnosis changed from Uc to Crohns when I switched to him. Anyway, I really hope this med starts to work for you!!! I’d be happy to talk to you and maybe we can get some tips from eachother. I pray you get better soon.

    1. I haven’t heard of etrolizumab. Is it still in clinical trials? Hopefully, it’s approved soon. I’m running out of options! My doc is still hoping that Entyvio will kick in. He moved me up to every 6 weeks for the infusions with Entocort, Hydrocortisone enemas, and Cortifoam in the mix. Oy. Hopefully, something works. I hope you start feeling better soon too! Isn’t a “fun” disease, isn’t it?

      1. This new drug is almost to be FDA approved. My GI doc is super smart and I trust him. He says it’s remarkable especially in people that fail remicade. It is currently still in trials but that should change soon. The nice thing is it only affects the gutt and not your entire body. My doc has been in Germany with trials of it there. I just got out of the hospital yesterday because my flare is kicking my butt. It’s so hard… I have to young kids.. 6 and 8 and I just want to be in mommy mode but this is a challenge and thank god my hubby is super awesome. This disease can get the best of us especially with taking steriods. Today I’m starting prednisone:(. I live in la Jolla a block from the beach and hopefully I can at least sit out there and try to remain positive in a situation like this:( how long does entyvio take to work and how long have you been waiting. I’m also doing hydrocortisone. Are you feeling tired? Nausea? I still keep blaming myself for remicade failing because it worked so nicely for a year. I felt so good!!!

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